Tag: health

  • Isn’t it obvious?

    Tony and I’ve never made a secret of his deteriorating health, or that the decision to go into resthome care was made by the medical system. We knew the time was coming, but the choice was taken from us – which was a good thing.

    In the six weeks he’s been in the home Tony has (mainly) been quite well, although he isn’t doing so well just now. A few people have made comments about how well he looks and questioned whether he needs to be there. Not helpful, even if well-intentioned.

    Yesterday Sandra visited an old friend of Mum’s who was sensible enough to ask “is Tony seriously sick?” and expect an honest answer. Sandra simply said yes. Mum’s friend said “thought so”.

    From the way the conversation went, I gather some people in town are discussing why Tony is in the rest home. It’s simple; he’s there because he needs to be. Yes, he’s that sick. If people want to know more, ask. We’re happy to provide the truth rather than have people make up their own version.

  • Gastroscopy time #BlogJune 28

    Tomorrow I’m having a gastroscopy to check if the ulcer that caused my perforated bowel back in April has fully healed yet. The surgeon who repaired the leak will be doing the procedure, which I’m grateful for.

    He’s patient and professional, and happy for me to listen to Pink on my phone while he works. The music helps me zone out, because having a camera shoved up your nose and down into your stomach without sedation isn’t much fun.

    Last time I had it done, in 2017, there was a medical misadventure that ended with me on life support due to Aspiration Pneumonia. The photo below is the immediate aftermath. That blog post is here https://cathsheard.wordpress.com/2017/05/07/hospital-dramas/. We’re all determined this time will be drama-free! I’m hoping the ulcer has completely healed, so fingers crossed.

    2017 – in ICU recovering from aspiration pneumonia
  • It’s going to be ok #BlogJune 26

    Tony came home for about 5 hours today, and we had a visit from his good friends Doris and Dan, and his brother Roger. The photo is an older one, when we met up with Doris & Dan in Hamilton.

    We sorted all his clothes and labelled them – I have a pile to wash and take to the Op Shop. We have his funeral clothes chosen and put aside. He’s picked what ornaments etc he wants, things with special memories, and we’ve put them in his room. His new duvet is on his bed, and I’ve got a cork board to go on the wall so he can put photos up. The room is looking like his now.

    Having Tony home was good, but also a bit stressful. I guess it’ll get easier over time? It reinforced how fragile his current relative wellness is, and how easily it could be unsettled. Still, while he can come home it’s nice for us to spend time together at the weekends – we need to make the most of these pockets of time together.

  • Trying hard #BlogJune 11

    I few to Christchurch today, and Alan picked me up for a break in Hokitika. Tomorrow I’m getting ready for spending the day working large with Penny.

    I talked to staff at the rest home, who felt Tony was quite unhappy. Not surprising. I spoke to Tony and, although he sounded tearful once or twice, he was trying hard to be positive. We talked about his there is no choice any more.

    We’ve both got a lot of changes to get used to and it’s going to be difficult. The only thing we can do is try our best and take each day as it comes. The photo below, of Tony with his good friend Doris, reminds me how much he has changed and why we’re at this point.

  • It’s done #BlogJune 10

    Tonight Tony and I moved him into Te Mahana for 10 days respite care. He had the choice of the (bigger) respite care room, or a smaller one that will be his permanently if he stays. He chose the smaller room “because I only want to move once”. He seems quite settled tonight and more accepting. The reality is, he may come home for a couple of days when I get back, but I doubt even that will happen. This is permanent becasue we just can’t keep him safe & he is very frail now.

    Last night he was really unwell. I put him to bed about 7 and lay holding his hand while he slept until about 9.30. He was feeling very sad, but that seems to have passed. As I said to him tonight, we’re not the first couple to face this and won’t be the last.

    So how am I? Sad. Relieved. Sad. Relieved. Repeat…

    I took a video to show family his room and this photo is a still from that of him waving for the camera 🙂