Tag: health

  • A balancing act

    Recently someone contacted me regarding the local newspaper and I felt the need to explain I have little spare time (not that they had pressured me at all – the need was in my own head). That said, my life is a bit of a juggling act, and I’m fortunate to have the support I need to keep the balance. Tony has always supported me to do my art and be involved in the wider library profession, and my family and friends support me in myriad ways.

    What’s going on in my life? Here’s a snapshot of most, but not all, the things:

    • I work fulltime as Libraries & Cultural Services Manager at STDC; I manage 7 libraries, the museum and an arts position
    • I’m Chair of the Professional Registration Board with LIANZA, which means I’m also ex officio to the LIANZA Council
    • I’m 3/4 of the way through the Papa Reo course with Te Wananga o Aotearoa
    • I mentor a couple of librarians around the country
    • I have a month long art exhibition coming up October with the lovely and talented Dimmie
    • I travel for work, and art, fairly regularly
    • I teach art classes locally, and am teaching in the South Island in July
    • Tony and I publish the local monthly newspaper
    • I have some ongoing health issues, and am waiting on a 3rd MRI (2nd on my spine)
    • I’m a food addict and, following weight loss surgery, need to make sure I do the right things every single day
    • Tony has some serious ongoing health issues which are increasingly restrictive
    • Tony has PoA for his cousin who has dementia, and I support him in this

    Don’t get me wrong – Tony and I have a good life; we’re fortunate and this busyness is my (our) choosing. But the health issues are an unwelcome complication that mean I make sure we both get enough rest, and there’s “uh oh” flexi-time built into our schedules. Taking anything else on just isn’t a goer for now.

    Tony & I 20190504

  • When angels run interference

    Anyone who follows me knows I don’t believe in God but do believe there’s a universal power and that angels watch over me. Sometimes the angels run interference – like yesterday…

    Short version of long tale. Took Tony to Hamilton to see the specialist yesterday as his legs are so sore and swollen it’s affecting his mobility and quality of life. 3 out of 4 Drs were called away so they were running 90 minutes late, but it meant we saw Vasu, his main surgeon, not an understudy. He listened, understood, agreed with me that Tony’s heart and kidneys need checking – because everyone gets fixated on his legs. I said I was concerned we’d come home and be back to square one because our Drs are nice but not hearing me. Vasu said “no, you’re dealing with me from now on and I’ll speak to our top cardiologist”. He gave us an x-ray form, and said they’ll be in touch. Angels #1.

    While we were waiting, a woman came out of the ward and I was “omg it’s JEN!”. Jen R is doing a “kick ass battle” with cancer – to use her term – and was starting chemo last night. We’re online friends for various reasons but hadn’t met in person. I leapt up and hugged her hard, laughing, then hugged her some more.  Angels #2.

    Archangel Michael, you rock!

  • Off to the surgeon

    Some specialists are always going to be very formal, “Hi I’m Mr X”. Tomorrow we’re visiting Tony’s vascular surgeon in Waikato. He first operated on Tony in 2012 and has done 7, or is it 8, surgeries since then. We’re on first names basis with Vasu these days!

    Tony has peripheral vascular disease. He had a small clot removed in the 1990s and was good until 2012. The first surgery with Vasu was to remove a 20cm clot. He has a ‘fem fem crossover’ so basically an artificial artery that takes blood from his good leg, across his groin, and down into his bad leg ending up in his lower calf. The artificial artery has been cleaned out a couple of times and also replaced.

    His bad (left) leg is increasingly painful and swollen, and his good leg is playing copycat unfortunately. They can only fix one leg this way, so there’s not a lot can be done for the right leg. But, as always, we’re hopeful Vasu will have one more trick up his sleeve.

    Once ‘we can fix it’ surgeries are no longer an option we’re left with pain relief and eventually amputation either due to complete loss of circulation or if it’s the best option for quality of life. Hopefully that’s a long way off yet. In the meantime we’re looking for better pain control, and perhaps even remedial surgery. Fingers crossed.

    This photo is from his 2014 surgery.tonys-hand.jpg

  • #BlogJune

    For the last few years I have joined #BlogJune on Twitter. It’s one of those challenges that you can do, sort of do or even not do, and no one minds.

    I’ve previously posted from my professional blog but – for all kinds of reasons – I’m not using that for now. With my library blog, I find regular writing is good for thinking about issues, but I’m not currently sharing those thoughts with the wider profession. 

    I like #BlogJune because it gets me posting more regularly. My focus this year is art, family, health, disability etc so I’m going to try and post once a day on this blog instead. Sometimes it’ll be an image from my art journals, other posts will be about our changing lives, or what the pets are doing – so a mix of miscellaneous nonsense and the occasional deep and (hopefully) meaningful ramble.

    If you want to join in, go for it. You don’t need to be on Twitter, you can just write and post the link anywhere with the hashtag and people are bound to find you. Following the hashtag can be a fun way to find new people to follow too. 

     

    zz blog

  • I actually paper crafted!

    I have been doing a weekly art journal page, and some knitting, since my last hospital trip but haven’t really had the energy for paper crafts. I miss it and know doing art is good for me – but the thought of packing and unpacking and just *doing* has been too much. Until today…

    I only managed three cards, but that feels like quite an achievement. I used my Stampotique stamps on Stampin’ Up cardstock, and for one I used a Distress Oxide background. The hare was originally on a plain background but I stuck some text on, didn’t like it, removed the text and tore the card base. I was going to throw it out, then thought better of it and just kept going – I think it turned out ok. Are they fairly basic? Yes, but a good feeling all the same.