Blog

  • Tony; it’s been a big week #BlogJune 7

    I’ve been saying for a while on FB that Tony isn’t very well, but haven’t gone into a lot of detail. I’m more open on Twitter because family don’t see it (with one exception – sorry Ro!). It’s where a lot of my support network is. Now it’s time to put a bit more on my blog.

    Tony’s got multiple complex health needs – diabetes, kidneys, congestive heart failure & AF, peripheral vascular disease, lung issues and there’s serious problems with his gut. We’re not investigating any of it because he doesn’t want much intervention and isn’t well enough for surgery etc. He lives on Fortisip, yoghurt, and ‘baby veges’ i.e. mashed potato, pumpkin, carrot etc and very occasionally a tiny bit of pork sausage from Normanby Butchers cooked by Tairoa Lodge. Oddly, it’s about the only meat he can eat.

    He had a fall last Sunday and again early this morning. No broken bones, but a decent bruise and painful lump on the back of his neck. Hospice think he’s having TIA (transient ischemic attacks) which are like mini strokes caused by a clot blocking blood supply in the brain.

    They seem to come in swarms, leave him very sleepy, with slurred speech for a bit and a few other physical signs such as his hands dropping constantly. He also talks rubbish for a bit – we’ve both had a few laughs out of it. I can kind of spot when they’re going to start now, which isn’t as useful as it sounds! After they stop, he sleeps deeply, often for only a few seconds or minutes at a time, but falls asleep over and over for hours.

    I am booked to go for a break at the end of this week. His brother Roger and a caregiver/friend, Janet, were going to look after him at home between them. After this morning’s fall we’ve agreed that’s not safe so he is going into Te Mahana for respite care, and to try it out. It’s a big step but feels inevitable.

  • Inspired by…. #BlogJune 6

    This multi-page spread in my Dina Wakley journal was inspired by Niamh Baly. I’m an avid follower and often find myself inspired by her, but this was a more direct inspiration than normal. Tony’s had a few rough days – that is another day’s post – so I spent a lot of today working on this while he slept in the lazyboy behind me. I used Dina Wakley paint, stamps, printed tissue and a page from her Collage Collective book. The quote is one I saw on FB that seemed appropriate, given all the support we’re getting at the moment. I’m pleased with how this turned out and glad I put the time into it.

  • Taboo! #BlogJune 5

    We sing along to songs on the radio about drugs and sex, watch all kinds of things on tv. Yet there are still things society tends not to talk about and poo is one of them, so is death and dying.

    Once you start dealing with both chronic and acute illness, serious pain relief, and the slow process of dying you realise there’s nothing sacred any more. Ever asked your significant other if it’s taking them ages to pee? Checked if they badly constipated again? Or cleaned up a poo puddle because the meds went too far the other way?

    At the start of a relationship it’s all sweet words and date nights. Lovely! Then something happens and you’re dealing with medical issues. Over the years both Tony and I’ve had serious health stuff happen, and we’ve both done the nursing.

    Now it’s my time to nurse him, and some days it’s hard. Really hard. But, after nearly 30 years, we can talk about poo, pain, death and dying. Fun? No, yet it’s also ok. The conversations matter, and sometimes there are tears, but I’d rather we talked than I had to guess. I just wish more people talked about the hard stuff.

  • Stress hands! #BlogJune 4

    When Tony and I were Mum’s carers she was in and out of hospital a lot. Nurses would greet me by name in the supermarket. It could be stressful juggling Mum, work, newspaper, art and daily life.

    For some reason I find polishing my nails soothing. I don’t generally do them because paint sticks to the polish; my hands are artist’s tools so the nails get a hard time.

    This week has been difficult. (edit – this is yesterday’s post which I didn’t get a chance to post) For the first time in a very long time – possibly years – I’ve polished my nails. And, yes, the blue polish already has tiny flecks of orange on it.

  • Play time

    There’s nothing like a little play time in my journals to restore my equilibrium! This layout is in my small Dylusions journal and used the Dina Wakley words collage tissue, and Dylusions paints and collage collections.

    #BlogJune 2021